Long day at the hospital
Well yesterday I spent from 1:00 pm till 6:00 pm at the Tom Baker. What a long day of waiting. The nurses were run off their feet and there were no beds or chairs to treat people. I think Monday's are usually busy days anyways. But 5 hours was a bit long.
I had a chest and abdomen x-ray done just to make sure all the air in my bowels was gone. There is no free air. Good.
I get to drop my steriods to once every second day. Hurray!!
My doctor agreed that I will not do any more treatment (other than my regular pills) until January. This will allow us to take our trips with no chance of an adverse reaction to drugs. He will scan me in November just to make sure things stay under control.
In January I would like to try new drug called Tykerb. I don't believe it is released in the States yet but it has really good reports. Dr. Webster is going to work on seeing if I can get it in January. I hope so. Herceptin may be working some (liver spots are smaller) but it doesn't seem to be keeping the cancer away totally.
So all good news.
Walking is getting better, legs are getting stronger, and I have gained 5 pounds. Sandy's mom Lorna still comes to stay with me everyday in case I fall, drives me to appointments and keeps me company. I also cannot do stairs by myself which means it is hard to take care of Rylie when no one is here to let her out. So she spends lots of time next door with her "Grandparents". I have received a handicapped parking pass which makes things much easier when I do some walking (errands) and working with the wheel chair when the walk is too long.
Well that is the update.
Nothing on the doctor side of things for the next 3 weeks until I have Herceptin and see the Dr.
Love to you all
Carolin
I had a chest and abdomen x-ray done just to make sure all the air in my bowels was gone. There is no free air. Good.
I get to drop my steriods to once every second day. Hurray!!
My doctor agreed that I will not do any more treatment (other than my regular pills) until January. This will allow us to take our trips with no chance of an adverse reaction to drugs. He will scan me in November just to make sure things stay under control.
In January I would like to try new drug called Tykerb. I don't believe it is released in the States yet but it has really good reports. Dr. Webster is going to work on seeing if I can get it in January. I hope so. Herceptin may be working some (liver spots are smaller) but it doesn't seem to be keeping the cancer away totally.
So all good news.
Walking is getting better, legs are getting stronger, and I have gained 5 pounds. Sandy's mom Lorna still comes to stay with me everyday in case I fall, drives me to appointments and keeps me company. I also cannot do stairs by myself which means it is hard to take care of Rylie when no one is here to let her out. So she spends lots of time next door with her "Grandparents". I have received a handicapped parking pass which makes things much easier when I do some walking (errands) and working with the wheel chair when the walk is too long.
Well that is the update.
Nothing on the doctor side of things for the next 3 weeks until I have Herceptin and see the Dr.
Love to you all
Carolin

7 Comments:
At 8:31 AM,
Anonymous said…
Hello Carolin!
I am so happy to hear things are going better! I hope you all have a wonderful time on your trip! Thank you for keeping us updated.
Love to you all, Janet
At 10:46 AM,
Anonymous said…
FANTASTIC NEWS! 5 hours is a bit much, but sounds like it was worth the wait! I'm glad you will be able to take a break from treatment for a while and enjoy Singapore etc. Excellent news.
Rebecca
At 12:07 PM,
Anonymous said…
You deserve a more relaxing autumn after your busy summer and it sounds like you have a good recipe for success (no new drugs or treatments). I'm so glad (and envious) that you will have a holiday in Singapore! That is one place high on my list to visit/ live but for now we are readjusting to life in Canada (Okotoks) after more than 4 years in Norway. I look forward to hearing about your trip!
Carolyn
At 12:43 PM,
Anonymous said…
Terrific news on the break from medicine for awhile. It's high time you had some enjoyment so have a great time in Singapore. So thankful you are getting stronger but it isn't a surprise what with your tenacity. Love and prayers, Jan (WE2EBC)
At 12:30 PM,
Anonymous said…
As usual you are amazing with being so positive. So glad to hear that you see progress - keep it up.
Hugs,
Cheryl
At 6:27 PM,
Anonymous said…
So happy to hear that you are feeling better....Keep up the great work!
Hugs,
Michon
At 8:45 AM,
Anonymous said…
ist nicht so toll
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