Cramming a lot of stuff in 2 and a half years
It's only been 2.5 years since a lump turned Carolin's world around. Her case was one of the stubborn ones and over that time many friends, neighbours, doctors, and technicians have chipped in their love and expertise to make things better for Carolin and our family. Two and a half years in, the battle is not going our way.
Today the doctor reviewed the latest test results. The liver cancer is there but it is also not the primary concern. It has responded to the Xeloda chemotherapy in the past. The cancer in her neck is a problem but some radiation may be done to knock it back a little. Carolin wears a neck brace much of the time. However the primary concern is the cancer in her head.
The cancer in her head is causing many symptoms including very poor vision, bad balance, and slurred speech. In the past the tumour in the center of her brain has been treated by both general radiation and stereo-tactical radiation. Unfortunately that tumour continues to grow and more radiation in the brain is not possible. The doctors are out of treatment options.
Several people have asked about chemotherapy and the brain. Unfortunately that doesn't work. The chemo molecules are too big to cross the blood-brain barrier so they don't get into the brain. The Xeloda treatments may help the cancer sites in her body, it won't help her head. If someone knows of something new that is injectable and treats the brain, I'd like to hear about it. (Tykerb cannot be dispensed in Canada).
Sandy
Today the doctor reviewed the latest test results. The liver cancer is there but it is also not the primary concern. It has responded to the Xeloda chemotherapy in the past. The cancer in her neck is a problem but some radiation may be done to knock it back a little. Carolin wears a neck brace much of the time. However the primary concern is the cancer in her head.
The cancer in her head is causing many symptoms including very poor vision, bad balance, and slurred speech. In the past the tumour in the center of her brain has been treated by both general radiation and stereo-tactical radiation. Unfortunately that tumour continues to grow and more radiation in the brain is not possible. The doctors are out of treatment options.
Several people have asked about chemotherapy and the brain. Unfortunately that doesn't work. The chemo molecules are too big to cross the blood-brain barrier so they don't get into the brain. The Xeloda treatments may help the cancer sites in her body, it won't help her head. If someone knows of something new that is injectable and treats the brain, I'd like to hear about it. (Tykerb cannot be dispensed in Canada).
Sandy

15 Comments:
At 6:21 PM,
Anonymous said…
I'm so sorry to hear that the doctors are out of options for Carolin's brain cancer. I know you likely hear it a lot, but we truly are thinking of you all the time. Rebecca
At 7:49 PM,
Anonymous said…
C:
My Oncologist friend here in Olympia is in China for 2 weeks. The minute he gets back I will ask. Judy and I think of you and your family daily and you are in our prayers.
Anything, anytime.
Rob
At 11:29 AM,
Anonymous said…
You all have had a great deal to handle and have travelled such a rough road for so long. I'm so sorry to hear about the lack of options for Carolin's brain cancer. You all are in my prayers each day. JanWE2EBC
At 11:33 AM,
Anonymous said…
How about getting in touch with the Lance Armstrong Foundation in Austin. Maybe they can suggest a treatment or a cancer center that is well known for brain cancer.
Saundra
At 2:00 PM,
Anonymous said…
I wish that I had the answers that could make it all better. You are always in my thoughts and prayers and I have grown to love your family so much over these last few years. I have had the great priviledge to spend "workout time" with Carolin and really enjoy her optimistic humor in everything she does. Just because she is not next to me at the gym, doesn't mean she's not there in spirit. A part of every workout I do is now for her and it makes me want to soar! All my love to your family, Lyndsay J.
At 4:09 PM,
Anonymous said…
We are so sorry to hear that there are no more options for Carolin's brain cancer. We are still thinking positive thoughts for her and for you here in Texas and will continue to do so.
Carolyn and Marc Karstaedt
At 6:28 PM,
Anonymous said…
Tonight on Global news they were talking about a new chemo that shrinks liver,breast & brain tumors.It is just in the experimental stage but maybe its something you could ask your doctors about.Think it was called DCA.Thinking of you all the time.Take care.
Love Chuck & Carol
At 6:46 PM,
Anonymous said…
Was watching Global news tonight and saw a new type of chemo which works on brain tumors called DCA. I do not know if it is available yet and it is a "kinder chemo". My prayers are with you. Jodi
At 6:51 PM,
Anonymous said…
Hi Carolin, this is my first time on your blog but I talk to Jodi and Lindsay about you every week. We miss you at the gym. I as well was watching Global news tonight and hope that you can find something that will help soon, you have been trough so much with so much courage. You really are an inspiration to us all. Please get better, we love you. Susan Dahl
At 9:12 PM,
Anonymous said…
A friend's mother is currently undergoing treatment for a brain tumor with something called TransMID. This treatment uses the Diphtheria virus to attack the cancer cells and leave the rest of the brain cells alone. Her prognosis is positive.
Here is a link to a UK website: "http://www.cancerhelp.org.uk/help
/default.asp?page=5239"
You can also "Google" for "Brain+Cancer+Diphtheria" to get a big long list of sites.
We will try to get the name of the oncologist and pass it along. The good news is that she is receiving this therapy in Calgary!!
You and your family are in our thoughts and prayers.
Sherry, Brian, Melissa, and Jennifer
At 1:16 PM,
Anonymous said…
Hi Carolin; I too, have missed you at the gym. There are so many that ask after you. All our thoughts and prayers are with you. Love Dianne
At 9:59 AM,
Anonymous said…
Carolin, I am always thinking about and praying for you. Sending you, Sandy and Jessica positive energy!! Love Michele
At 10:33 PM,
Anonymous said…
Carolin - I've been keeping up with all your blogs and it always inspires me how you can continually have such a sense of humour. I'm so sorry to hear the latest news. I wish I had an answer or even some great words of wisdom. Thinking of you.
Adrienne
At 11:14 AM,
Anonymous said…
Carolin, remember the poem we read when we were last together - it summarizes you and your strength.
What Cancer Cannot Do
Cancer is so limited....
It cannot cripple love
It cannot shatter hope
It cannot corrode faith
It cannot destroy peace
It cannot kill friendship
It cannot supress memories
It cannot silence courage
It cannot invade the sole
It cannot steal eternal life
It cannot conquer the spirit
All my love, Dawn
At 9:03 AM,
Anonymous said…
See
http://www.rso.ualberta.ca/news.cfm?story=55249
regarding DCA
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